Starting to get calls and texts again, so some of you are very good at knowing its been 3 months since my last appt. For the rest of you, i just wanted you to know . . .
so far, so good!!!
Starting to get calls and texts again, so some of you are very good at knowing its been 3 months since my last appt. For the rest of you, i just wanted you to know . . .
so far, so good!!!
Hello friends! not to worry, this has nothing to do with my ovaries! this has everything to do with [younger] women and their cycles. [I am doing well]
My Daughter Dana and her business partner Ariel have started an exciting new company called OVA MOON that has created an effective, amazing Menstrual Balancing Supplement (check them out at www.ovamoon.com ). After a year and a half of research and consultation with acupuncturists, naturopathic doctors, and herbalists, They have crafted a formula that includes a unique combination of vitamins, minerals, and herbs that balance the body in ways that support a woman's reproductive system and reduce the discomfort that many experience with their menstrual cycles.
Too many people suffer with symptoms of PMS, menstrual cramps, premenstrual soreness, acne, exhaustion, and headaches unnecessarily. [I was one of them] These symptoms are often a result of hormone imbalances caused by insufficient nutrients not provided by the foods we eat which are needed for basic functioning of our bodies. Environmental toxins and stress can also compromise our cycles. Sadly, most folks are not educated enough about these topics, and we can feel helpless about what to do. [I suffered in silence-although my mother might disagree about the silent part!] These 2 gals are fully committed to rewriting the menstruation narrative. Their incredible new supplement, along with more education available on their online platform, www.ovamoon.com will empower all women and will improve their overall quality of life. It already has for those who have been taking it.
If you have any discomfort associated with your cycle, I’d love for you to try her daily supplement. And if you know of anyone else who struggles with any of these issues, please share this product with them. As part of their soft launch, they are offering 50% off your first month using the code OVALOVE. Feel free to share this code with friends and THANKS SO MUCH for your support. You can cancel anytime if you don’t feel transformed!
Now I am not going to say that it will prevent ovarian cancer, but hey, we don’t know that it won’t! . . . Give it a try and support two smart young women who want to better the lives of women everywhere!
#takeyourvitamins #dailysupplement #periodtalk #womenshealth #healing #menstruationmatters #periodpower #periodrevolution #periodpositivity #pmsproblems#pmsing #pms #OVAMOONsupplements #femaleempowerment #period #periodpower #menstrualcycle #timeofthemonth #menstruation #periodpain#menstrualhealth #wombwellness #hormoneimbalance #periodfood #womenwisdom #fixyourperiod #functionalmedicine
and if you could share, like and pass this info on to others, all will be well in the world 😘
hiked into Tennessee beach with jake and dana
Read Moresorry friends, you have all been so supportive of me. I hadn’t thought about keeping this blog up, actually I never thought it would go as long as it has! I realize now [because I have gotten so many calls and texts of late] that the folks that don’t get to see me might be worried because they haven’t heard from me in awhile.
I have been feeling better and am back to life as usual. Wish I could say I had no aches or pains, but they have definitely subsided and I am not complaining [unless of course you ask, then I will oblige]
I go back to the doctor at the end of the month . . . and I will get back to you with the good news. I am not worried, I feel good and my body is healing from the trauma of chemo.
I even went for my first haircut yesterday!
I hope you all are enjoying your spring. We have been busy doing all the traveling that I couldn’t do last summer. I went to Durango with friends, then to see Dana and Jake in northern California [and snuck in a fun visit with cheryl, a college roomie] I am headed to Florida next week for my parents 60th, yes sixtieth wedding anniversary. Although the traveling is tough on my bod, spending quality time with family and friends makes it all worth it.
be back in may, until then have fun and listen to your body! xoxo
I wanted to wish you a happy new year and let you all know that I am doing well. A lot of people are asking me how I am and why I haven’t written. It isn’t you, it’s me! I know that if I say I don’t have much to say, people who know me well will call BS, so let me just say that everything that I am experiencing right now I am told is part of the healing process [of the after effects of chemo] So from the outside I look well, but am still struggling on the inside a bit. I am looking forward to a happy and healthy new year and wishing you one as well.
Until next year . . .
Since I can’t remember who I have told about this, I will just let you all know the good news. This morning I went for a lung biopsy. I have had a few CT scans of my chest because they were watching some nodules that have been there since all this started. After the last one, when chemo was already finished, a new nodule had appeared. Normally, BC [before cancer] it would be something we would have just watched, but everyone involved thought we should get it checked out and catch it small since there was a pretty high percentage it could be cancerous because of the primary ovarian cancer.
So they told me to be there at 6:30 for a 9 am biopsy. That sounded ridiculous so I told Dave I needed to be there at 7am. By the time I saw the doctor and they gave me the anesthesia it was almost 11am. They put me in the CT scanner to locate the nodule so they could do the needle biopsy and he couldn’t find it! That is the good news! I didn’t have to have the biopsy, instead I will just have to go for another CT scan down the road to make sure I am still all clear there. So besides too many pokes in my arms to draw blood and get the IV in, I am good to go. YAY! [dave actually ended up putting the IV in after watching them try a few times]
A lot of people have been asking about my painting and if I was back at it. The answer is yes, I am trying. I think as the months go on it will get easier. I do love to be in my studio. In the meantime, I took down my art show and am trying to sell off some paintings. So I set up a web page if anyone is interested, discounting everything. If you find something you like, you can make me an offer, I would prefer one of you had them so that I don’t paint over them!
www.sbeckerpaints.com/paintings-for-sale
or just contact me about commissions or possible holiday gifts :-)
I probably shouldn’t have promised if I wasn’t going to take a lot of pics but we did go to a fun party and there were a lot of great costumes. (This is the guy that didn’t want to go to the party ;-) This picture makes my hair look much darker than it really is but it helps you see that it is filling in quite nicely.
thought I would share a pic of my little neighbor friend since she is much cuter than we were and reminds me of little dana at that age!. Hope you all had a 🎃 happy halloween! 🕷🕸🧡
If you read all of this, I promise to post halloween pictures!
We are aware that ovarian cancer can be one of the deadliest cancers because there are no effective screening methods yet. Due to that, most cases are diagnosed when they have already progressed to the most advanced stages. Many of the symptoms can be very vague and subtle so it is challenging to pinpoint. As of now, there is no definitive blood test, ultrasound, or other effective tool to diagnose ovarian cancer.
Friends keep asking me how did you know? [I didn’t] I am not sure why ovarian cancer symptoms aren’t more widely advertised so that more women are aware. The symptoms are so innocuous that they probably think if they advertise the symptoms that gynecologists everywhere will be inundated with phone calls from bloated women with gas pains!
I am here today to encourage you that when you go for your next exam, please ask for a vaginal ultrasound. Some gyn’s do it routinely, mine did not. If she had we would have seen there was something wrong 5 weeks earlier. [I am not saying that it would have prevented anything for me, but we could have addressed it sooner] All I am saying for you, the folks still reading this [thank you?], is be your own advocate, you know you would do it for your kids, spouse or parents. If your gyn doesn’t or won’t. Find a new one. If you live in Phoenix I can give you a name of a great gyn who does. All gyn offices have the machines right there and it should be routine. It is a tool that could save our lives, not just monitor the new lives that we carried inside us.
The reason ultrasound is important and what makes the diagnosis so difficult is that the ovaries are deep in the abdomen, where they have room to grow before giving rise to symptoms or physical findings. Like I said earlier in this blog, I am lucky because I was vain and didn’t want to buy larger pants. There wasn’t as much room for it to grow in me so I felt it sooner rather than later which was a good thing.
The ovaries, which are normally the size of an almond, about an inch and a half long, can usually be felt in a pelvic examination. But a cancerous ovary may be normal in size and still spread disease. And sometimes overlying muscle and fat prevents doctors from feeling tumors in the abdomen until they grow quite large. My ovary was roughly the size of a grapefruit, yet my gyn did not detect an abnormality 5 weeks before in my exam. [an ultrasound would have shone it] It took a CT scan to show the tumor/mass. that we had to ask for because I was having pain in that area.
So in review ;-) a simple, definitive test to diagnose ovarian cancer in its earliest stage does not yet exist. One current test measures CA-125, an antigen linked to ovarian cancer. [Mine is in normal range now ;-)!] The test can aid in diagnosis and can help doctors monitor the progress of cancer. It is a blood test BUT it is not definitive; the amounts of CA-125 may rise when no ovarian cancer is present, or may be normal when cancer has spread. So it is an unreliable indicator but it is all they have right now which really sucks.
My gynecologist does not do yearly ultrasound exams even though many gynecologists say a combination of the CA-125 test and ultrasound offer the best hope for detecting the cancer at an early stage. Again, if I were you, I would ask for one at your next appointment because if you bothered reading this, you are defiantly worth it!
So remember as I wind this ramble down, ovarian cancer whispers and it may just be an ultra sound that hears.
[FYI: the National Preventive Services Task Force recommended against using CA-125 or ultrasound tests to screen women for ovarian cancer. Some doctors use CA-125 in women at high risk for ovarian cancer, due to genetic markers or family history. If levels of CA-125 rise over several successive tests, this can be a signal to explore further.] [I had no history of ovarian cancer in my family, I am the first that I know of]
The question I get most from folks who aren’t able to see me in person is how is your hair?* Although I have nothing to compare the growth to, I can say it sometimes seems like it is growing fast, like each day it seems a little longer-but then I see a photo with me in it, and it doesn’t look like it has grown at all. Right now my hair is soft to the touch [it is quite new to me to have random people want to run their fingers through my hair, but now it seems to happen quite often! ;-)**] It looks like I am going to have a gray patch up front, and after that the gray’s and the darks are fighting it out over the rest of my head. The gray’s seem pretty ornery and wiry and stick out a bit while the darks are softer and more tame. [I was told my hair would be back in 3-6 months after my chemo was done and it has been about 2 1/2 months] So before you know it I will look like myself again and I won’t be reminded of this whole ordeal every time I look in the mirror. Yay for hair!
*after how are you feeling, of course
** I don’t mind . . . and please feel free to massage while your at it! ;-)
Ok, so I’m back. We had such a good time in Italy. We arrived back this week and am I happily exhausted. If you’ve ever or never been, it is both beautiful and hard work at the same time. In Firenze {Florence}, the history, the views, but oh those ancient cobblestone streets and steps, oy!
We climbed to the top of the Duomo of Santa Maria del Fiore, only 463 steps. There were little windows where you could stop and take in the city. Part of the cat walk is along the inside of the dome and you get to see the frescoes up close.
We traveled with friends that were fun and adventurous. We saw ancient art, we saw graffiti art and we ate. A day wasn’t complete without cappuccino, pastries, pasta, pizza, wine and gelato, not always in that order and not necessarily only once a day. There was a lot of walking to do and stairs to climb and we needed fuel. [In case you’ve never been, you will be happy to know that carbs are still cherished in europe, so we ate them joyfully-and often.]
To rest our legs we rented vespas and toured the Chianti classico region for a day! [lunch in Castellina in Chianti]
A special treat came halfway through the trip when Dana flew in to join us and celebrate her 30th birthday [so of course we went for gelato!] and the next day we headed to Vernazza in Cinque Terre on the Italian Coast. {map]
and then there was the hiking. This is most of the reason people go to Cinque Terre. There are 5 fishing villages that you can “walk” to. [You can take trains and boats as well] Since this trip was planned before I was diagnosed I wasn’t really sure if I was going to be able to do the “walking” when I got there. I told myself I would just take the train and meet them in the next town, but FOMO took over and I decided to give it a try, I mean, how hard could it be???
Wellllllll with stairs and steps that are sometimes narrow, uneven and steep, sometimes I found I had to lean on someone or grab a helping hand or just hold back and rest. I found with resting I could really enjoy the views ;-) I did better and much more than I thought I was going to, not without pain of course but I would have felt the pain of missing out if I didn’t give it a go. [You will be happy to know that when they all hiked back to our village, I took a boat ride, which was lovely.] Truth be told, I would have had a hard time with these hikes with or without ovarian cancer, they are tough because of all the up and down, but they were so gorgeous!
Since I knew I couldn’t hike every day, we came up with other things to do. We took a cooking class and made pesto and gnocchi which was so much fun.
We rented scooters again so Dana could have the experience and then rode the train for some of our transportation.
we made it to all 5 towns while we were there, plus we went north to Levanto to get out of the crowds and loved that too!
Eating award winning 2nd pizza dinner after 1st pizza dinner wasn’t great. Also pictured are our morning bowls of coffee
life is starting to get back to my new normal. Still have same ole same ole aches but they are letting up a bit and for that I am very thankful. My hair is coming in slowly but now there are some dark sprouts joining the white ones. Only time will tell which will be more dominant and if curls will overtake the straight locks. [they are straight now because they are not even an 1/8" long ;-)]
I just want to be able to move forward with life but these doctors keep reeling me back in because they are worried about this and that. I know that is a good thing but I guess I thought I was just done. I am coming to the realization for the next 5 years at least I am not done and I need to do as they say and go for the blood work, have the CT scans, see the specialists and whatever else they want to make sure the cancer doesn't rear it's ugly head somewhere else. I think once I am feeling 100% it will be easier, but right now, not so much. It can be a bit stressful.
On the bright side though, before my diagnosis we had planned a trip to Italy [Firenze 6 days, Cinque Terre 4 days] to celebrate our friends anniversary and Dana's 30!!! birthday!!!. Physically, it isn't exactly how I would have wanted to go on a big trip but I am adaptable and it is what it is, and I am going. Don't worry I have no problem sitting down and resting when I need to. If you have been around me you know I am not that proud. Well we leave before the crack of dawn so I must be off but wanted to say thanks again for your continued support, it means the world to me! Ciao and Grazie!
So its been 40 days since my last chemo treatment and for the most part all is well. I won't go into what isn't because I am the first one to say how sick of I am of hearing about it [and feeling it], so I imagine you are too. Instead lets talk about my hair, or lack of it. People say to me well now we will find out what color your hair really is? I think to myself, well I could just tell you, but hey, ok.
As I showed you a couple of weeks ago I was was photographed as a 40 something yr old blonde [or pictured with some anyhow], but it turns out instead of being a blonde, I am all platinum. My nice friends say well you don't know, they still might . . . [it is nice to have optimistic friends, however misguided]
I took this picture today to show you how far my hair has come. The oncologist says it take 3-6 months for your hair to come back in. This is a little over a month. Looks like it will be perfect timing for the cooler weather!
You may have heard me say I am probably not going to do another solo art show again. Well a year and a half ago I said that I would, and that time is now. Of course the timing is lousy but it has pushed me to get off my sofa and figure out what I was going to put in the show. This is not all new work [and that is why I said yes to it] but I do have a couple new pieces. It has been nice to be painting even if it was only for short intervals because of fatigue or dizziness. The image in the promo is rather large, don't ask. Friends said wouldn't it be easier to paint something small, even lap size? no doubt . . . not sure why I didn't think of that.
I rarely paint with teal, I usually move towards a more turquoisy or yellowy color but that green kept moving into my palate so I decided to go with it. I figured that I must need to just get ovarian cancer out of my mind and my system so maybe this life size challenge will help me do it.
So anyhow, I have been laboring away this labor day weekend and in the evening going to dinner parties which has been lovely. I am still pretty damn tired all the time but trying as hard as I might to get back to my normal life. I basically just need to take a lot of breaks to sit down [dizzy] and rest [legs still hurt] and catch my breath [my lung capacity sucks!]
So glad it's September and I am feeling better than I was [and glad to have August behind me]. Starting to feel a little cool air in the mornings and evenings and that is enough to make any Arizonian happy!
Hope you all are having a good weekend and enjoying this day off! Come up and see me next friday if you are around!
I can tell from the amount of texts and calls that I have been getting that my curious peeps out there are wondering how I am doing. I guess I haven't written because I was hoping to say everything was back to normal when I wrote back to you and I have just learned that might be a little while yet.
Tuesday I had a follow up visit with my oncologist. As I sat in the waiting room happy about being done, seeing some of my infusion neighbors made that hard knowing that for some, this chemo crap continues on. I had my blood work done and then some more waiting around for my turn with the doctor. We discussed how I am feeling [not great, still fatigue easily, still pain but now mostly in my legs] Luckily the nausea seems to have passed for the most part and just have some lightheadedness left. She thought I was doing very well, and explained that the timeline in my bald little head might be a little off. Turns out it may take months [possibly up to six of them to feel as I did before all this started]
I have been going for blood work every week since my surgery and so we discussed those results and fluctuations. She was concerned that my tumor markers were still too high for having gone through surgery and chemo and she wants to see me back in a month instead of three. She ordered a CT scan which I had done on thursday but still don't have the results. This blood test is the one screening we have for ovarian cancer and the one that I told you was so unreliable, so we were trying not to worry. In the meantime, after much reading and listening to podcasts about cancer and diet, I had cut meat out of my diet. I am not cooking it at home and so we are eating mostly plant proteins and just trying to be healthier in general. [have not cut out fish or eggs but are going easy] The good news in all of this is that the results from this weeks CA-125 [tumor markers] test came back and my levels finally dropped! So we are all very happy. Was it the vegetarian diet? Of course I can't be certain, but there is a lot of evidence to say that animal proteins feed cancer cells so I myself and not going to question or take any chances at this point in my life. Plus I am finding that coming up with complete vegetarian meals is interesting and tasty. I have also learned that plants do have protein and there is too much hype about how much protein one needs in a day. Dave even says he feels better, lighter and has more energy. I can't really judge that for myself right now but I am eating well and looking forward to having more energy, sooooonnn!
I was given the go ahead to do whatever I feel I can, soooo this weekend I helped throw/went to my first party. It was to celebrate a good friends birthday, it was suppose to be a happy hour but went on for many hours, I didn't crawl into bed until 12:30, which I would have considered very late even in my healthiest of days. Saturday I did not move from the couch and I am back there now writing to you. [but it was worth it!]
so although the week started out with some unknown stressors, it has ended with some relief with the tumor markers going down and my red and white blood cells in normal range finally. So it is good news all around, I just have to CONTINUE to be patient! I hope you all enjoyed your weekend.
I know this is a shameless plug of myself but incase you aren't on social media or haven't wandered around before, this blog is actually on my painting website [because I wasn't sure how else to do it] so if you ever feel like it you can look around and see what it is I do by using the pull down menu at the top of my website. Or read the article. Or neither :-)
I still don't feel great but at least I don't have more chemo on tuesday, so that is a bright spot. So maybe neeexxxxxt week I will feel better?????
http://voyagephoenix.com/interview/meet-sara-reinstein-becker/
I hope everyone had a good weekend. I just wanted to let you all know I am starting to feel a little better which makes me happy. Like I told you last week this nausea was bumming me out, but I feel like I am turning the corner with it. The other stuff like pain is easier to deal with. But the real reason I am here is to tell you how awesome people are, well you probably know that because you are my people, but just today I got beautiful sunflowers from a neighbor and then this gorgeous watermelon from my friends garden. I LOVE watermelon and this was a very nice gift since she didn't have that many [so I feel honored]. I also received a little painting this week from an artist friend, dinner mailed to me, a friend who won't let me pay for lunch until I have hair and someone needlepointed me a fuck cancer picture, how great is that! So of course having cancer sucks, but I would be lying if I didn't say hearing from all of you hasn't been a nice way to get me through all this. Also, I might have gone through my whole life not knowing that I had a stork bite on the back of my head/neck, so theres that!
wishing you [and me] a good week ahead!
hi, again, I wish I could say I just got back from running a marathon, but I will likely never utter those words. Instead, I am struggling to walk to the bathroom and do everyday things that we normally take for granted.
but I do feel fortunate that this is going to end for me soon.
I know you want to hear how I am doing. Although I really don’t have anything new to add except the symptoms/side effects seem to have come on sooner than past treatments which isn’t fun. I am also having more nausea this time which is also no fun.
A lot of very nice people have been asking after me, I just wanted to assure you all that I am doing ok. It is a one day at a time kind of thing and I am planning on each day get easier and just want to thank you again for your concern.
thank you for every card, post, message, call, text, meal, and positive thought. You have helped allow me to deal with all this with optimism and positivity. Having your strength and encouragement behind me gives me the daily support I need. I want you to know I appreciate all your support even if I don't always get back to you or thank you properly for the nice things you've done.
hope you all have a nice sunday and are able to keep cool!
Here I am in the club that I never wanted to join (the initiation sucked btw {by the way} looking around this room I’m guessing no one here wanted to join either. I guess you could call it a fight club, although I have looked everywhere for Brad Pitt . . . We are all fighting nevertheless.
I was a little worried this morning about my blood draw because last week my red and white blood counts were low and they won’t give you the chemo if they drop too low. I arrived at 8:15 waited, blood drawn, waited, seated in infusion room, and then waited until labs came back. Blood work was good and so here I am. Nurses had a hard time getting the IV in [took 4 people trying and then decided to go for the hand] so if you see me soon, you might think this club has a sick hazing ritual or that I am a drug addict (but I gotta say if I were to do drugs, these would not be my drugs of choice) so anyhow it’s 4:00 and I have at least another hour hour 1/2 or so, my bags are full (and I am not just talking about the ones under my eyes) I am tired but happy that this is it. I would be lying if I said I wasn’t dreading the next 3 or so weeks ahead and what the cumulative chemo will bring me. Knowing it’s the end does help, knowing you all think I am so strong helps for sure, even when I have never felt weaker. Thank you again for going along on this journey. Having you by my side whether near or far, hugs and/or kisses, texts and calls, FaceTime, FB, cards, oh so many cards wow! Plants, flowers, messenger, veggies, bags of goodies, insta, these things have all made me feel your love and helped me through the tough days. You can be sure when it comes to inviting new members to this not so exclusive club, I will be the first to blackball all of you. F this club! Let’s join a fun one! Who’s in?
it's hot, it's cold, it's hot, it's cold [or was that just me?] . . . I was kicking things on and off all day. [This was taken toward the end of 8 and half hours, a bit harder to smile]
took a bunch of pills and powders
wasn't recognized by my yard guy of 20 years [I guess it's true we all look alike]
painted until I was tired [not very long]
rested and read about neuropathy and why my fingers and toes are still tingly/prickily and painful [answer: chemo]
ate
face timed with a far away friend :-)
painted a little more
rested and snacked [did I tell you crying is back]
read some more, this time about why my legs still hurt [answer: chemo]
laying here thinking about soaking in the pool before dinner if I can get up the energy. I Invited Jake over for dinner. He is moving to California soon to start his doctorate program in psychology and so I want to cook while I can. I know I won't feel like cooking after my next round of chemo so I don't want him to leave town without a home cooked meal! [Next chemo is tuesday the 31st and is said to be the last one, so yay for that]
Nope, Dana isn't still here, she was really only here for 48 hours but I thought I would share this picture with you.